Day one of treatment. . . over!

Hey hey hey!

So first of all Britney Spears was freakin' amazing! I loved it. She didn't pull me up on stage. . . Maybe next time! Kayla and I were dancing the whole time! My dream job would be to be Britney's back up dancer and go on tour with her! It was awesome! ! ! ! !

So I had my first day of treatment yesterday. Before treatment I had to be at the hospital at 8am for a small out patient surgery.They took a small noodle size piece out of a tumor under my right arm. I will do this again in 8 days or so. Hopefully we will see change in the tumor and know if the treatment is working.

After that I then went to treatment. I took four pills. That was it. Well kinda. After I took the medicine then it was EKG and blood work every hour on the hour.I was there from 1:00pm till midnight. Long day. My port didn't want to work the whole time but I am thankful I have it.

Today I took the medicine at 5am. You have to fast one hour before and two hours after. That way I could eat breakfast and dinner around normal times. You take the medicine 12 hous apart.I am feeling ok. Pretty tired and an upset stomach but that's it.So that's pretty good!

Miss and love you all

Love

09-09-09 long day

Hey all! So this morning I had a wake up call for 6:30am. Then took the shuttle from the hotel to the hospital. I had an EKG this morning, then blood work, then an echocardiogram, then a test for HPV, then a PET scan that doesn't start till 4:30pm. If I get called on time then I will be done by 7:30pm. Worst part about it is that you can't eat or drink for six hours before the scan. I got to Houston yesterday around noon then went to the hotel and then straight to the hospital. Had blood work done and had to sign my agreement formally saying I was ok to start the new treatment. Afterwards my friend, Kayla picked me up and took me to see her new place and to dinner.Everyone is being really nice down here. Like I said it has been a long day but not too bad. Tomorrow I have a chest PA and LAT, I don't know what that is and then I have a CT scan. That all doesn't start till 3:50pm. So I will be sleeping in tomorrow! I will keep updating! Writing has helped pass the time! We will see how it goes. . .

Love

Phase one trial treatment. . BRAF

HEY hey Hey!

So I am heading to Houston on Tuesday of next week. Once I get there it will be all testing. I then start the official treatment on Monday. The treatment is called BRAF. It is a targeted cell therapy. The idea is to stop the protein called BRAF from making more cancer cells. The treatment comes in cycles of three weeks and they are all back to back. So the first cycle I have to be there every day. The second cycle I have to be there on day one and day eight. So basically I am going to be down there for almost five weeks. Only four other people in the world have gone through the treatment. They are on dose three or four by now. Oh and they are from Australia. So there will be two of us doing the treatment in Houston and there will be another two in Nashville. 

While I am down in Houston I have decided that I am going to write. My whole story. The good, bad, and the ugly. I will still blog and email. But lets face it I will have a lot of time on my hands. Hopefully I won't be too sick. 

I am going to see Britney Spears on Sept. 16th with Kayla! I am so excited! I think she is going to call me up on stage! A girl can wish!

I want to thank everyone for their thoughts and prayers! I think this is going to be a good thing. I am a little nervous but ready at the same time!

I will try to blog every day and keep you all updated.

Again thank you all

Love~